Real Talk: Expectations vs. Reality – Part 2

Emily, Piper and Somer continue their “real talk” about living for each day, reinventing their future and being up for a good challenge.

Oct. 20, 2015 | 1 min read
Ashling Knight

Last month, we brought you the first in a series of real conversations about living with CF, “ Expectations vs. Reality - What We Were Told.”

Today, we bring you part two, “Our Lives Today,” where Somer Love, Emily Schaller and Piper Beatty-Welsh chat about living for each day, breaking down barriers and reinventing their future. Watch their conversation below.

Editor's Note: During the conversation, Emily mentions being taken off of Medicare for being considered “too healthy.” A person becomes eligible for Medicare only after 29 months of receiving Social Security Disability Insurance benefits (SSDI). However, even if a person no longer meets the criteria for disability and becomes ineligible for SSDI benefits, he or she may be able to keep Medicare benefits in some cases. If you have questions about Social Security benefits or Medicare coverage, contact the CF Legal Information Hotline.

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

Share this article
Parents & Guardians | Insurance

Ashling previously worked at the Foundation as a digital content manager. She helped keep the Foundation's website and blog up to date with news and information that's important to the CF community. Ashling first got involved with the Foundation through Delta Phi Epsilon sorority at York College of Pennsylvania, where she earned her B.A. in public relations. Originally from New Jersey, she now lives in Pennsylvania with her husband, son, and two dogs.

Recent Community Posts
My Long Journey to a CF Diagnosis
Blog | 10 min read
Finding Stability in the Unknown
Blog | 6 min read
Advocating for Health Equity in Cystic Fibrosis
Blog | 6 min read