Why I Became a 2016 Great Strides Ambassador

My life milestones wouldn't have been possible without the drive and dedication of the generous people who donate to the Cystic Fibrosis Foundation.

June 27, 2016 | 3 min read
John Thomas

When I was diagnosed with cystic fibrosis at the age of 12, I did not know what this disease was. Back then, we didn't have the internet to google all the horrific details of CF, so all I could think to myself was, “OK, we finally have an answer to why I have felt so sick the last few years of my life.” 

I remember my mother and father being visibly upset when they were told the news. If I could go back in time and tell my parents, and everyone else who thought that I was given a death sentence, that I would be doing pretty good 19 years later, I sure would!   

Looking back, I can say that I never let that diagnosis stand in the way of living out my dreams. Even at an early age, I was driven to be successful in whatever I put my mind to. But as someone with CF, my “bucket list” was a little different than others who weren't battling a life-threatening genetic disease. My bucket list included graduating high school, attending and graduating college, having a career, getting married, having a family, owning a home and living a long and prosperous life.  

Nineteen years later, I have accomplished many of these items. I graduated high school and college. I have a full-time career. I married a wonderful woman, my high school sweetheart, who accepts me for who I am … and we have a growing family. We are beyond fortunate to have our daughter, who continues to inspire me to be the healthiest version of myself, and later this year we are adding twins.


But these life milestones wouldn't be possible without the drive and dedication of the generous people who donate to the Cystic Fibrosis Foundation. The advances in medical treatment that have been made in the last few decades have allowed me and thousands of others battling this disease the opportunity to follow our dreams. I honestly do not know where my life would be without the researchers, doctors and nurses who are supported by the Cystic Fibrosis Foundation.   

To show my appreciation and gratitude, I walk in Great Strides every year. I want to show all the people who helped me live the life that I imagined for myself -- as well as the younger generation of people with CF -- that I am doing great. As one of the 2016 Great Strides Ambassadors, I want people to know that I am living proof that their donations truly make a difference. 

There are so many people whom I will never get the opportunity to personally thank. So my promise to them is that I will never take this life for granted. I have been afforded the opportunity to make my dreams come true and have the possibility to pursue many more goals in my future … all thanks to the selfless people who want to see the day when CF stands for cure found!

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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Born and raised in Ohio, John was diagnosed with cystic fibrosis when he was 12 years old. Today, he is married to his high school sweetheart, is a father and works full time.

John is living his dreams and taking CF along for the ride. He credits his healthy life to the support of his wife and family, as well as the Cystic Fibrosis Foundation's dedication to research and care. John chronicles his journey with CF in his blog, Living My Dreams With CF.

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