Asking for the Gift of Time

I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.

Dec. 20, 2016 | 4 min read
Drew Dotson

Measuring cups. Check. Four hand towels. Check. A crockpot. Check. Gift-wrapping? Yes, please.  

With a few clicks of a mouse or a quick trip to the store, wedding gift shopping is complete for most guests, an item marked off their to-do list.

But what if newlyweds asked you for more time? Could you fulfill that request?

Time is a precious commodity. Think of how often you hear people say that there simply aren't enough hours in a day. For someone living with cystic fibrosis, the concern goes beyond the hours in a day; instead, it's about the number of days. How many days will there be? How many tomorrows? How much time?

When I was 9 years old, I decided I was never going to get married. That may sound a bit premature for a kid, but I was just grasping my life with CF. Knowing that marriage is a lifelong commitment, it didn't seem fair to burden someone else with my uncertain future. I thought I was making the selfless choice by ensuring I would not get married.

As I grew older, I remained committed to my decision. That is, until I met the person who chose to love me, without hesitation.

Ramon and I met in December 2011; I was 25 years old. Within days, I knew I'd met the person I wanted to be with forever. I just didn't know what our “forever” would entail. Nobody knows what the future will hold, but life with a chronic illness adds another layer of complexity. While we both had (and still have) anxiety when we think too far into the future, it encouraged us to enjoy the present. Despite our concerns, our love for each other overpowered our fears and we decided on a lifetime together.

On Dec. 20, 2015 -- on the four-year anniversary of the day we met -- Ramon and I tied the knot at a small, casual ceremony. The day was simple yet magical; we didn't need anything fancy as long as we had each other.


After we announced our marriage, our family and friends started inquiring about gift requests. The answer was a no-brainer: we wanted time and the gift of tomorrow. For us and for so many with CF, time means medical advancements and steps toward a cure.

In April 2016, we created a wedding registry of “future memories.” “Future memories” may sound contradictory but we knew we needed more tomorrows to build our life together. Through the Cystic Fibrosis Foundation, we created a passion fundraising event, a customized page to tell our love story and explain our wish for donations to the Foundation -- a request for more time for Ramon and me. The response was overwhelming.

In three months, we raised more than $25,000 in celebration of our new life together. Our donors ranged from childhood friends to colleagues to complete strangers. We could barely keep up with writing thank-you notes as the donations poured in; we were so grateful for the love and support we received. Ramon and I take comfort knowing that we've received a gift that will live on beyond the two of us. Every donation toward a cure for CF gives us the thing we desire the most: time.

Our linens may not match and we may have to mix things by hand, but our hearts are full of love and a promise for the future.

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

Share this article
Get Involved | Fundraising | Social Life and Relationships

Drew is an Atlanta-based author who uses her experience with cystic fibrosis, widowhood, and humor to inspire and uplift others. She posts regularly on her blog and has also written a memoir that will soon be seeking publication. She currently works as a freelance writer and uses her improv background to lead therapeutic sessions and communication workshops. She is also a passionate advocate for the Cystic Fibrosis Foundation. She lives with her three senior beagles, Noodle, Benny, and Magpie. Connect with her on Instagram and Twitter

Recent Community Posts
An Unexpected CF Diagnosis
Blog | 5 min read
Reclaiming My Identity After Starting Trikafta
Blog | 8 min read
The Impact of Advocacy Beyond the Hill
Blog | 6 min read