We are excited to announce the new name and look that the Adult and Family Advisors (AFA) members helped us pick out to better embody the spirit of the group: Community Voice.
Community Voice represents the cystic fibrosis community's dedication to help drive improvements that will benefit everyone impacted by CF. No one is more important in shaping CF programs than you -- the person who lives with CF every day.
Across the Foundation, we are committed to embedding the voices of CF community members into everything that we do. We do this not because it sounds nice, but because it makes us better and it makes us more effective at supporting the CF community. Only those affected by CF day in and day out are the experts on living with cystic fibrosis -- that means not just people with CF, but also their spouses, parents, siblings, and other family members. Your expertise and input through Community Voice helps us shape programs and initiatives in ways that are most responsive to the needs of the entire community.
Through participation in activities like surveys, focus groups, and committees, this group has helped inform our web content, clinical trials, transplant programs, mentoring initiatives, CF Care Guidelines, programs for adults with CF, and so much more.
Our goal is to continue to grow Community Voice to include a broad range of perspectives on CF. Everyone has a different story and experience. We want to hear yours.
There are many reasons to join Community Voice. Here are the top five:
- Take an active role in shaping resources for the CF community.
There is no better or easier way to play a role in shaping nationwide Foundation initiatives than by joining Community Voice. - Provide input on the topics that mean the most to you.
When you join Community Voice, you will provide information about you, your connection to CF, and what you are interested in. This information will allow us to tailor the opportunities we send to you based on what is most important and relevant to you. - Choose how you participate.
We know how busy life with CF can be -- so you can participate in opportunities that best fit your life. Whether filling out a five-minute survey, participating in an online focus group, or serving on a committee, your insights will help guide the direction of programs and initiatives. -
Learn about initiatives at the CF Foundation.
Members often get an early look at what programs and initiatives are in development for the CF Foundation. By joining Community Voice, you will get exclusive updates and an inside look at what is happening at the Foundation. - Make a difference.
Most important, you will have a chance to make an impact by sharing your unique perspective. Share your story with us on social media using the hashtag #CFvoice.
Join us -- sign up for Community Voice and share your VOICE!
