Watch Teens Make Their Voice Heard on Capitol Hill

Watch how teens advocated on behalf of their friends and family with cystic fibrosis on Capitol Hill during the 10th annual Teen Advocacy Day.

| 2 min read
Remi Orlinsky

Teen Advocacy Day is an event unlike any other, where teens between the ages of 12 and 18 share stories with their Congressional representatives about their family members and loved ones living with cystic fibrosis. This year was my fourth Teen Advocacy Day, and my first as a Teen Advocacy Day intern.

This year's Teen Advocacy Day was such an amazing experience, with more than 200 advocates, including 70 teens, representing 32 states in attendance at the 10th annual event. As an intern, it was inspiring to join the teens, some of whom have built relationships with their representatives through visits year after year, and some who were on the Hill for the very first time.

To me, Teen Advocacy Day is a way to keep my mother's story alive and give back to the community that helped her live 34 years longer than her doctors predicted. Even though she lost her fight with cystic fibrosis, thousands are still living with the disease every day, and are continuing to fight.

It's impossible to put into words just how spectacular this event is, so this year the Cystic Fibrosis Foundation, with the help of the amazing teens participating, put together a video to show first-hand what it's like to be a teen advocate.


This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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Remi is an alum of Teen Advocacy Day and is an ambassador for South Florida Great Strides. She is originally from Fort Lauderdale, Fla., but has lived in Washington, D.C., for almost three years. She is currently attending American University, where she is studying marketing. When she is not in school, you can probably find her at a concert. Follow Remi on Instagram @r_orlinsky.

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