Top 10 Blog Posts of 2020

With more than 100 blog posts shared on the CF Community Blog this year, we've covered a range of topics from COVID-19 to Trikafta® and are looking back at some of your favorite posts. Take a look at the countdown to the most-read blog post below.

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Hannah Avery
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10. Reproductive Health Q&A: How Modulators Affect Fertility and Pregnancy in CF
By Dr. Jennifer L. Taylor-Cousar and Maddie Poranski

Does Trikafta® increase the chance of pregnancy for women with cystic fibrosis? Can men regain their fertility on modulators? I recently had a candid chat with the chair of the Women's Health Research Working Group to find out the answers.

 

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9. Being a CF Spouse During a Pandemic
By Julie Riedy

Summer 2020 is simply not like the others. For me, a teacher and CF spouse, the unknown is taking away some of the normal summer bliss. But it's been hardest on my husband who feels he is holding us back as stores and restaurants gradually reopen.

 

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8. Wearing a Mask is Not About You
By Gina Alejandra

It's troubling that many people without chronic illness feel wearing a mask is too much of an inconvenience for them.

 

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7. Trikafta Caused My Anxiety and Depression to Return
By Lauren Lavelle

After finally feeling like I had the right medications to manage my anxiety and depression, I started Trikafta®, and everything changed. Struck with fatigue, all I wanted to do was stay in bed.

 

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6. What to Look for in a Relationship When You Have CF
By April Biggs

Having cystic fibrosis will interfere with your relationships. I'd like to share with you some hard-won lessons about how I continue to keep my romantic relationship healthy.

 

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5. Your COVID-19 Questions Answered
By James Lawlor

At ResearchCon 2020, President and CEO Dr. Mike Boyle answered some of the community's top questions on COVID-19. Here's your guide to hearing the answers to your questions.

 

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4. What I Learned About My Trikafta Weight Gain
By Meagan Helmick

Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn't mean that I wasn't grateful for all Trikafta has done for me.

 

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3. Trikafta Shattered My Negative Attitude and Expectations
By Vincent Donato

Having already been underwhelmed by Orkambi® and Symdeko®, I was skeptical about whether the triple-combination therapy would live up to the hype. However, after a month of being on Trikafta®, I feel improvements in my lung function, weight, and overall energy.

 

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2. Tips on Surviving Quarantine From a Person With CF
By Leah Schwanke

Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.

 

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1. Facing the Monster: My COVID-19 Experience
By Robyn Petras

Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.
 

Interested in sharing your story? The CF Community Blog wants to hear from you.

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About the CF Foundation
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Hannah is a senior community engagement specialist at the Cystic Fibrosis Foundation. In her role, Hannah engages with the CF community to develop content to support the Foundation's programs and manages the editorial calendar for the CF Community Blog. She has a bachelor's degree in public relations with minors in professional writing and business leadership from Virginia Tech. Hannah lives in Washington, D.C., and in her spare time, she enjoys trail running, reading with a cup of coffee, and spending time with her friends and family.

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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.