10. Reproductive Health Q&A: How Modulators Affect Fertility and Pregnancy in CF
By Dr. Jennifer L. Taylor-Cousar and Maddie Poranski
Does Trikafta® increase the chance of pregnancy for women with cystic fibrosis? Can men regain their fertility on modulators? I recently had a candid chat with the chair of the Women's Health Research Working Group to find out the answers.
9. Being a CF Spouse During a Pandemic
By Julie Riedy
Summer 2020 is simply not like the others. For me, a teacher and CF spouse, the unknown is taking away some of the normal summer bliss. But it's been hardest on my husband who feels he is holding us back as stores and restaurants gradually reopen.
8. Wearing a Mask is Not About You
By Gina Alejandra
It's troubling that many people without chronic illness feel wearing a mask is too much of an inconvenience for them.
7. Trikafta Caused My Anxiety and Depression to Return
By Lauren Lavelle
After finally feeling like I had the right medications to manage my anxiety and depression, I started Trikafta®, and everything changed. Struck with fatigue, all I wanted to do was stay in bed.
6. What to Look for in a Relationship When You Have CF
By April Biggs
Having cystic fibrosis will interfere with your relationships. I'd like to share with you some hard-won lessons about how I continue to keep my romantic relationship healthy.
5. Your COVID-19 Questions Answered
By James Lawlor
At ResearchCon 2020, President and CEO Dr. Mike Boyle answered some of the community's top questions on COVID-19. Here's your guide to hearing the answers to your questions.
4. What I Learned About My Trikafta Weight Gain
By Meagan Helmick
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn't mean that I wasn't grateful for all Trikafta has done for me.
3. Trikafta Shattered My Negative Attitude and Expectations
By Vincent Donato
Having already been underwhelmed by Orkambi® and Symdeko®, I was skeptical about whether the triple-combination therapy would live up to the hype. However, after a month of being on Trikafta®, I feel improvements in my lung function, weight, and overall energy.
2. Tips on Surviving Quarantine From a Person With CF
By Leah Schwanke
Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.
1. Facing the Monster: My COVID-19 Experience
By Robyn Petras
Finding out I had COVID-19 was frightening, but much of what my brother and cystic fibrosis taught me about emotional resilience helped me get through it. This is the story of my journey surviving cystic fibrosis and COVID-19.
Interested in sharing your story? The CF Community Blog wants to hear from you.
