What CF Taught Me About Planning for a Baby

 When I decided it was time to start a family, I quickly realized that — just like living with CF — having a baby would mean preparing for the unexpected, especially when it came to finances.

Aug. 7, 2025 | 5 min read
A selfie of Mariah Caise
Mariah Caise
Mariah Caise sitting on a blanket outside holding a heart-shaped pillow with a sonogram on it

Planning financially to start a family involves discipline, commitment, and dedication. It’s not something that can be done overnight; it took me time due to other factors in my life that still go on. I think of financial planning as another layer that needs to be added to my already busy life. But with the right steps, planning, and attitude, I was able to get there with minimal stress.

For me, before starting a family, I needed to know what I was starting with income-wise and what money was already allocated to other things. It was important to first figure out what my money was currently going toward — the basics I needed and fixed expenses (like rent, insurance, electricity, car notes, etc.) These are the expenses that will stay the same every month regardless of my situation. These won’t change, so I must factor these into the budget first to see what money is “left over” for me to spend or save. 

I next focused on the variable expenses, the bills that could change every month depending on how much I spend (like groceries, food, extracurricular activities, credit cards, etc.) The variable expenses are where I really had to start planning, because these are the expenses that can be changed. I looked for ways to minimize these costs, then I took the money that would’ve been spent on these expenses and put it aside in a savings account for starting a family. 

After I outlined all my fixed and variable expenses, I then came up with a specific number that I could save per month while still being comfortable enough to pay my bills and do some fun activities. When choosing this amount, I had to be realistic and practical — careful to not set a goal so high that it will leave me struggling to survive, because that can take a toll on anyone mentally, physically, and spiritually. I also gave myself a realistic time frame to properly save enough money. For me, that was about a year and a half. It did require some cutbacks but still allowed me to live my life while also being able to put aside money for potentially starting a family. 

Thinking about my future family also involved understanding my insurance coverage. Family planning is not cheap, even before the baby is born. Once I was pregnant, the number of medical appointments and tests that were needed was a lot. When going to appointments, I was still paying high co-pays and expensive bills before I met my deductible. Some tests weren’t covered at all, so I had to work out a payment plan. There was genetic testing I had done for the baby, and this was expensive and left me with a ginormous bill that I had to pay for. Most visits, I had co-pays and because I have cystic fibrosis I was considered high risk. So on top of regular maternity visits, I also had extra CF visits to monitor my lungs and overall health. 

I struggled with some visits because the co-pays were really adding up, but I was able to talk to the doctor about it, and they worked with me on a plan to get the tests needed without causing me to struggle in the process. 

One more aspect of insurance I investigated was figuring out how much more money will be spent once a baby is added to my current insurance plan. Babies require lots of attention medically, so I factored in the amount of money that will be paid toward the insurance as well. Having a baby is an exciting time, but the planning part can be overwhelming. 

Financial planning for a family can be unpredictable at times and hard work. It is a lot like having CF — no matter how much planning I do, there will always be that element of surprise. But that is exactly why planning is so vital, because if the unexpected occurs, I have the resources, funds, and ability to pivot.
 

One important aspect I made sure to remember is not to forget myself in the process. Having CF and wanting to start a family can be a weary thought. I must deal with the CF component, which automatically makes my pregnancy a high-risk due to having a chronic illness. So, this requires more medical visits, closer evaluation, and ensuring that my health doesn’t take a decline in the process of starting a family. But I learned there are various resources available that can ease the financial burden of these visits and tests. When I was as open as possible with my medical team, they were able to help make the journey that much easier. 

Interested in sharing your story? The CF Community Blog wants to hear from you.

Disclaimer

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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Topics
Family Planning & Parenting | Managing Finances
A selfie of Mariah Caise

Mariah is an adult with cystic fibrosis who was diagnosed at birth. She has her bachelor’s degree in business and master’s degree in accounting from the University of Michigan, and she now works as an accountant full-time. In her free time, Mariah enjoys participating in bowling leagues and tournaments. She has served on various CF Foundation committees including the CF reproductive and sexual health collaborative, and the CF financial wellness committee. You can find Mariah on Instagram.

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