You may have a lot of questions, and may not know where to start. While there is a wealth of information available, we pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.
CF is a genetic disorder that affects the lungs, pancreas, and other organs. While there is not yet a cure, we've come a long way with treatments and guidance for managing and living with this chronic disease.
First, you'll want to find a CF care center in your area, and get ready to build a relationship with the people there. They will be your #1 source of medical guidance. They'll work with you to create, and help you follow, a treatment plan that works with your life.
Even though CF is a rare disease, you're among a strong community of people who are navigating some of these same challenges alongside you. Here are a few ways to connect and find support.
We have dozens of chapters across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
The CF Community Blog is a dedicated platform where anyone in the CF community can share their personal stories, reflections, and insights.
Contact a dedicated CF Foundation Compass case manager:
Call us at 844-COMPASS
(1-844-266-7277)
Mon - Thu, 9 am - 7 pm ET
Fri, 9 am - 5 pm ET