You may have a lot of questions, and may not know where to start. While there is a wealth of information available, we pulled together a few of the key things you should know, and sources of help and support, right here on this page. Keep reading. You're in the right place.
CF is a genetic disorder that affects the lungs, pancreas, and other organs. While there is not yet a cure, we've come a long way with treatments and guidance for managing and living with this chronic disease.
First, you'll want to find a CF care center in your area, and get ready to build a relationship with the people there. They will be your #1 source of medical guidance. They'll work with you to create, and help you follow, a treatment plan that works with your life.
Even though CF is a rare disease, you're among a strong community of people who are navigating some of these same challenges alongside you. Here are a few ways to connect and find support.
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
The CF Community Blog is all about sharing the experiences, reflections, and perspectives with others in the cystic fibrosis community.
Contact a dedicated CF Foundation Compass case manager:
Call us at 844-COMPASS
Mon - Thu, 9 am - 7 pm ET
Fri, 9 am - 5 pm ET