Your support helps accelerate progress

Together we...

• Continue our venture philanthropy, a research funding model that the Foundation first established, which is now emulated by nonprofits everywhere. The model we founded spurred the discovery of multiple breakthrough CF therapies that target the underlying cause of CF. 
• Advance CF science by investing more than $290 million a year in CF research and care, with plans to spend two billion between now and 2030 to urgently drive progress.
• Continue to foster the development of new therapies, with dozens in the drug development pipeline. Today, there are more than 15 CF treatments available to many people with CF, leading to longer lifespans and better quality of life.
• Support pioneering research into genetic-based therapies to help all people with CF regardless of their genetic mutations. The Foundation is now collaborating with leading biotech companies to apply the world’s best science to CF. There are currently hundreds of scientists working at 300+ labs across the country. We also collaborate with researchers globally on CF clinical trials.

• Are part of the Therapeutics Development Network (TDN), a model for research networks globally that the Foundation initially launched. As the largest CF clinical trial network in the world, the TDN has conducted hundreds of clinical studies for CF to help accelerate the delivery of new treatments. This network is the hub for critical research advances in areas such as difficult-to-treat infections, advanced lung disease, CF-related diabetes and nonsense and rare mutations.

Your support strengthens our community…

Together we...

• Champion policies to protect the CF community and advance health equity. Our advocacy team advocates alongside the CF community for policies that support access to high-quality specialized care for all people with CF and their families. These advocacy efforts have resulted in historic wins – including protections for pre-existing conditions and mandatory newborn screening for CF in all 50 states.
• Support the CF community at every step of their journey through Compass, a free service offered by the Foundation that helps CF families navigate insurance, financial, legal, and other issues. Each year, Compass fields thousands of calls from CF community members.
• Partner with the CF community to continuously learn from and engage with those living with this disease, resulting in meaningful programs that support people with CF no matter where they are on their journey, such as CF Peer Connect and Community Voice. We also enjoy connecting with community members at thousands of events nationwide, including virtual events like BreatheCon and ROSE UP. 

Your support advances innovative care

Together we...

• More than doubled the life expectancy of those living with CF over the past three decades by championing high-quality, specialized care, and therapeutic progress.

• Established a globally recognized care model that includes hundreds of accredited CF care centers, which deliver the gold standard in CF care by offering high-quality, customized care through a multidisciplinary approach.

• Are evolving our care model to meet the emerging needs of people with CF become more heterogenous and as they live longer.