Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Our goal is to educate policy makers about the needs of people with cystic fibrosis so that they make smart decisions about CF-related research, treatment, and access to care.
We recognize the value of tapping into the expertise that only people with CF and their families have. We invite you to share insights to help improve and develop programs and services that support the daily lives of people with CF.
Our mission is to find a cure for cystic fibrosis and improve the quality of life for those living with the disease. We can't do it alone. Help us add tomorrows by giving today.
In addition to working for a cure, the CF Foundation supports programs and policies to improve the lives of people with CF. Help us by raising awareness of CF, participating in a fundraising event, or volunteering with your local chapter.
1 Huntington QuadrangleSuite 3N06
The Greater New York Chapter - Long Island Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Long Island CF Cycle for Life 2018
6:30 AM, September 15, 2018
Splish Splash Waterpark
Greater New York - Long Island
Get your wheels in motion and join us for our 7th annual bicycle event as we ride through some of the most picturesque and scenic terrain on Long Island.
Swing Fore a Cure
September 24, 2018
Tuxedo Country Club
Greater New York - Westchester
On behalf of the Swing FORE a Cure Golf Committee and the Cystic Fibrosis Foundation Greater New York Chapter we would like to thank you for your continued support in helping to find a cure for cystic fibrosis. We hope you will be able to join us at our 9th Annual Swing Fore a Cure golf outing.
Greater New York CF Climb 2018
10:00am, October 14, 2018
USTA Billie Jean King National Tennis Center
Greater New York - Manhattan
CF Climb is a challenging and unique fitness event where participants climb the flights of stairs in a tall building or around stadiums in a test of endurance and time. Whether climbing to improve timing or to simply cross the finish line, this event is a great way to spend the day with co-workers, friends or family while “Adding Tomorrows” for people with cystic fibrosis.
TCS New York City Marathon
Varies by Wave, November 4, 2018
Run with the Breathe Team and support the Cystic Fibrosis Foundation's Greater New York Chapter. We have secured several charity bibs in this amazing event for those who would like to run for a cause in this elite 26.2 mile event and fundraise a minimum of $4,000.
Breath of Life
Breath of Life Gala
6 PM, November 15, 2018
Cipriani 42nd Street
Greater New York - Manhattan Office
The Breath of Life Gala is the annual signature fundraiser for the Cystic Fibrosis Foundation's Greater New York Chapter. This high profile event attracts corporate leaders, tastemakers, and influencers from the New York Metropolitan area.
Jingle and Mingle
7-11 PM, December 1, 2018
Kick off the season with an evening of holiday cheer filled with cocktails, a dinner buffet and live music from BonJourney. A silent auction, photo booth and wine toss round out the evening for a fun and festive night!
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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