Newborn Screening Clinical Care Guidelines

Most newborns in the United States are screened for CF at birth through newborn screening. All 50 states and the District of Columbia now screen for CF.

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The guidelines for CF newborn screening discuss:

  • Developing a screen that finds infants most likely to have CF
  • Avoiding sweat tests for infants less likely to have CF
  • Contacting the family doctor and the family with newborn screening results
  • Counseling families and discussing next steps

"Guidelines for Implementation of Cystic Fibrosis Newborn Screening Programs: Cystic Fibrosis Foundation Workshop Report." Pediatrics 2007;119:e495-e518

Use of These Guidelines

The CF Foundation intends for this executive summary of its guideline to summarize the published guideline. The published guideline summarizes evidence, and provides reasonable clinical recommendations based on that evidence, to clinicians, patients, and other stakeholders. Care decisions regarding individual patients should be made using a combination of these recommendations, the associated benefit-risk assessment of treatment options from the clinical team, the patient's individual and unique circumstances, as well as the goals and preferences of the patients and families that the team serves, as a part of shared decision-making between the patient and clinician.

The guidelines were published in February 2007, they were reviewed in April 2019 and it was determined that no update is needed at this time.

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