The letter to Senators Mitch McConnell and Orrin Hatch highlights the critical role that Medicaid plays in helping patients and consumers access adequate, affordable health insurance.
June 15, 2017
|
2 min read
The Cystic Fibrosis Foundation today mourns the passing of legendary sports journalist Frank Deford, whose young daughter Alex lost her fight to CF in 1980, and who served as chair of the Cystic Fibrosis Foundation's Board of Trustees from 1982-1999.
May 30, 2017
|
2 min read
Eight Patient/Consumer Groups Urge Senate to Start Over
May 25, 2017
|
4 min read
The U.S. Food and Drug Administration (FDA) today approved ivacaftor (Kalydeco®) for people ages 2 and older who have at least one of 23 residual function mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene.
May 17, 2017
|
3 min read
The legislation would impact the health care coverage of millions of Americans, including people living with cystic fibrosis.
May 4, 2017
|
3 min read
Eight organizations issue statement criticizing Upton Amendment.
May 4, 2017
|
2 min read
The U.S. House of Representatives has passed the American Health Care Act (AHCA), legislation that fails to adequately protect people living with cystic fibrosis.
May 4, 2017
|
3 min read
Legislation would leave millions with inadequate, unaffordable care as they battle chronic and other major health conditions.
May 2, 2017
|
3 min read
Watch the entire leadership conference, including all of the break-out sessions and Medical Hot Topics, from start to finish.
May 2, 2017
|
2 min read
Yesterday, the Cystic Fibrosis Foundation met with HHS Secretary Tom Price and seven other patient advocacy groups to discuss drug pricing and the needs of the CF community. President Trump has identified drug pricing as a top priority, and this meeting was the start of a listening tour by the Secretary.
May 2, 2017
|
2 min read