During the annual event, volunteers advocated for the PASTEUR Act and the HELP Copays Act, two bipartisan pieces of legislation that could have substantial, positive impact on the CF community.
- About the CF Foundation
- Public Policy
- Drug Pipeline
- CFTR Modulators
- Get Involved
- Genetic Therapies
- Our Research Approach
- Clinical Trials
- Health Care Reform
- North American CF Conference
- Care Centers
- Our Advocacy Work
- Patient Assistance
- Cystic Fibrosis Foundation Therapeutics (CFFT)
- Patient Registry
- Infection Prevention and Control
- Lung Transplantation
- In the Spotlight
- Coronavirus (COVID-19)
- Diversity, Equity, and Inclusion
- Intro to CF
- Clinician Resources
- Great Strides
- In Memoriam
- Adult Care
- Care Team
- CF-Related Complications
- CF Related Health Conditions
- Fertility and Reproductive Health
- Researcher Resources
- (-) Advocacy
206 care center directors sign a letter citing clinical consequences if decision moves forward.
Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.
Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.
More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community.
Marissa Benchea and Jeremy and Rachel Olimb to lead the Foundation’s volunteer advocacy base into a new chapter of CF
More than 160 people with CF and their loved ones from across the country advocated for a more robust antibiotics pipeline during the CF Foundation's virtual March on the Hill.
The Cystic Fibrosis Foundation celebrates the decision issued by the United States Supreme Court in California v. Texas, ultimately protecting the Affordable Care Act.
The Cystic Fibrosis Foundation recently submitted comments to the National Institutes of Health on improving racial equity, diversity, and inclusion in the biomedical research workforce.
Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.