News and Press Releases
Research Cystic Fibrosis Foundation Commits $100 Million to Infection Research

Funding will support improved detection, diagnosis, prevention, and treatment of infections related to cystic fibrosis.

Oct. 18, 2018 | 4 min read
Cystic Fibrosis Foundation Awards Grants to Eight Community Programs

2018 Impact Grants provide funding for efforts that support people with cystic fibrosis and their families.

Oct. 10, 2018 | 5 min read
Health Care Reform | Advocacy CF Foundation Signs on to Amicus Brief in Legal Challenge to Short-Term Health Insurance Rule

The Cystic Fibrosis Foundation has joined 11 other patient groups in filing an amicus brief to challenge the short-term, limited-duration health insurance rule, which threatens access to adequate, affordable coverage for people with cystic fibrosis.

Oct. 8, 2018 | 3 min read
Health Care Reform | Advocacy | Insurance 27 Patient Groups Express Disappointment in Final Rule on Short-Term, Limited-Duration Insurance Plans

Responding to the U.S. Department of Health and Human Services final rule on short-term, limited-duration insurance plans, the Cystic Fibrosis Foundation joined 26 other nonpartisan patient and consumer groups to voice concern that these plans will split the market and jeopardize access to affordable, adequate health care for people living with pre-existing conditions.

Aug. 2, 2018 | 3 min read
Our Advocacy Work Patient Groups Decry Administration’s Latest Effort to Undermine Quality and Affordable Health Care

Responding to the Trump administration's recent decision to freeze risk adjustment payments, the Cystic Fibrosis Foundation joined 13 other nonpartisan patient groups to voice disappointment in the latest administrative efforts to undermine adequate and affordable health care for people with pre-existing conditions. 

July 16, 2018 | 3 min read
Advocacy CF Foundation Responds to Justice Department Decision

The Department of Justice's decision to no longer defend critical provisions of the Affordable Care Act (ACA) risks health insurance coverage for people with cystic fibrosis and other pre-existing conditions.

June 15, 2018 | 2 min read
Health Care Reform CF Foundation Denounces Latest Action by the Administration to Undermine Protections for People With Pre-Existing Conditions

The Cystic Fibrosis Foundation joined 28 patient and consumer organizations in responding to new Centers for Medicare and Medicaid Services (CMS) guidance issued by the administration that undermines patient protections granted by the Affordable Care Act.

Feb. 10, 2018 | 3 min read