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News and Press Releases
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Reverse Consequential Decision on Copay Assistance

206 care center directors sign a letter citing clinical consequences if decision moves forward. 

Dec. 19, 2022 | 3 min read
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Address Its Decision to Decrease Copay Assistance for People with Cystic Fibrosis

Vertex’s copay assistance changes add an undue burden for people living with an already expensive, challenging lifelong disease.

Nov. 23, 2022 | 3 min read
Advocacy | Antibiotics | Public Policy 165 Organizations Urge Lawmakers to Advance PASTEUR Act Before Congress Ends

Bill will jump-start rebuilding of the antibiotics pipeline that is vital to stave off a looming pandemic.

Nov. 16, 2022 | 3 min read
CFTR Modulators FDA Approves Orkambi for Children With CF Ages 1 to 2 Years

Orkambi® is now approved for use in children with cystic fibrosis ages 1-2 years who have two F508del mutations. This is the only modulator available to very young children with these mutations.

Sept. 2, 2022 | 3 min read
Public Policy CF Foundation Celebrates Passage of the Inflation Reduction Act

The law signals major improvements in health care affordability for people with CF.

Aug. 23, 2022 | 3 min read