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News and Press Releases
Advocacy | Our Advocacy Work Nearly 200 Teens Gather Virtually for the Foundation’s 12th Annual Teen Advocacy Day

Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.

| 3 min read
Advocacy | Our Advocacy Work CF Foundation’s Statement on ICER’s Revised Evidence Report on Treatments for Cystic Fibrosis

Cost effectiveness analysis must be used carefully and as part of a comprehensive evaluation of the value a treatment, such as highly effective modulators, provide to people living with cystic fibrosis.

| 2 min read
Our Advocacy Work | Infection Prevention and Control | Germs Cystic Fibrosis Foundation Statement on COVID-19 Triage Plans

A cystic fibrosis diagnosis must not disqualify an individual from life-saving care.

| 2 min read
Advocacy | Our Advocacy Work The Cystic Fibrosis Foundation Urges Congress to Expand Paid Leave Policies

More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.

| 2 min read
Advocacy | Our Advocacy Work More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

| 3 min read
Advocacy | Our Advocacy Work CF Foundation Joins Amicus Brief in Support of Critical Patient Protections and Coverage Expansion

On Monday, April 1, the CF Foundation joined 16 other patient and consumer groups in filing an amicus brief supporting vital patient protections and coverage expansion included in the Affordable Care Act in the appeal of the Texas v. United States decision, which struck down the constitutionality of the health care law in 2018.

| 4 min read
Health Care Reform | Our Advocacy Work | Insurance CF Foundation Responds to Final Short-Term, Limited-Duration Health Insurance Rule

Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.

| 2 min read
Our Advocacy Work Patient Groups Decry Administration’s Latest Effort to Undermine Quality and Affordable Health Care

Responding to the Trump administration's recent decision to freeze risk adjustment payments, the Cystic Fibrosis Foundation joined 13 other nonpartisan patient groups to voice disappointment in the latest administrative efforts to undermine adequate and affordable health care for people with pre-existing conditions. 

| 3 min read
Our Advocacy Work Cystic Fibrosis Foundation Responds to ICER Review of CFTR Modulators

The Cystic Fibrosis Foundation responds to the Institute for Clinical and Economic Review's assessment of the comparative clinical effectiveness and value of cystic fibrosis transmembrane conductance regulator (CFTR) modulators.

| 4 min read
Our Advocacy Work Foundation Shares CF Expertise to Inform ICER Assessment

The Institute for Clinical and Economic Review (ICER) developed an assessment of the comparative clinical effectiveness and value of cystic fibrosis therapies. The Foundation provided input to help inform this process.

| 2 min read