News and Press Releases
Advocacy Tax Reform Bill Expected to Be Signed Into Law

The package of tax reforms expected to be signed into law includes several provisions that will impact some people with cystic fibrosis.

| 3 min read
Advocacy | Insurance 17 Patient Advocacy Organizations: Congress Must Act to Stabilize Insurance Markets After Repealing Individual Mandate

A group of nonpartisan patient and consumer organizations issued a statement after passage of the Tax Cuts and Jobs Act.

| 2 min read
Fundraising Journalist Scott Pelley Honored for Tirelessly Championing the CF Foundation’s Mission

The Cystic Fibrosis Foundation's Greater New York Chapter recently recognized leading journalist Scott Pelley at the 14th annual Breath of Life Gala for his unwavering dedication to those living with CF.

| 2 min read
Our Research Approach CFFT Activities Transferred to the CF Foundation

This week, Congress approved a budget resolution that will allow lawmakers to make certain changes to the Affordable Care Act and Medicaid.

| 1 min read
Get Involved Foundation Announces 2018 Volunteer Leadership Conference Co-Chairs

Bonnee Binker and Paul Motenko to lead efforts in Washington, D.C., for volunteer conference, teamMATEs: Together Until It's Done.

| 3 min read
Medications Study of Ivacaftor in Children Ages 1 to 2 Shows Positive Results

Positive results from a study of ivacaftor (Kalydeco®) in children ages 1 to 2 were announced today.

| 2 min read
Health Care Reform CBO Report Shows Repeal of Individual Mandate Would Result in 13 Million More Americans Uninsured, Higher Premiums

As the Senate considers adding repeal of the Affordable Care Act's (ACA) individual mandate to its tax reform package, a group of 16 nonpartisan patient and consumer groups issued a statement on last week's Congressional Budget Office (CBO) report.

| 2 min read
In the Spotlight | Advocacy Cystic Fibrosis Foundation Awards Sen. Susan Collins the Breath of Life Legislator Award

The Cystic Fibrosis Foundation awarded U.S. Sen. Susan Collins (R-Maine) the Breath of Life Legislator Award on Nov. 3 for her leadership in ensuring that people with cystic fibrosis have access to the adequate, affordable care they need to live full and healthy lives.

| 3 min read
Fundraising Celebrities and Golf Enthusiasts Support CF Foundation at Annual Ultimate Golf Experience

The 23rd annual Ultimate Golf Experience (UGE) brought together a star-studded lineup of entertainers and friends, who gathered in Newport Coast, Calif. to raise funds in the fight against cystic fibrosis.

| 3 min read
ICER Announces Value-Based Assessment of Cystic Fibrosis Therapies

The Institute for Clinical and Economic Review (ICER) is developing an assessment of the clinical effectiveness and value of lumacaftor/ivacaftor (Orkambi®) and ivacaftor/tezacaftor (VX-661). The Foundation is sharing input throughout the process to help incorporate the patient and clinical perspective.

| 2 min read