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Advocacy | Our Advocacy Work Teens Advocate on Capitol Hill During the Foundation’s 15th Annual Teen Advocacy Day

More than 60 teens from across the country — almost half of whom live with cystic fibrosis — advocated for support of the PASTEUR Act.

| 3 min read
Our Advocacy Work CF Foundation Advocates to Protect Needs of People With CF in Post-Pandemic Medicaid Redeterminations

Medicaid beneficiaries are encouraged to update their information with Medicaid to ensure continued coverage.

| 5 min read
Advocacy | Our Advocacy Work More Than 175 Advocates Urge Action During 16th Annual March on the Hill

During the annual event, volunteers advocated for the PASTEUR Act and the HELP Copays Act, two bipartisan pieces of legislation that could have substantial, positive impact on the CF community.

| 3 min read
Advocacy | Our Advocacy Work Teens Advocate for the PASTEUR Act as Part of the CF Foundation’s 14th Annual Teen Advocacy Day

More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community. 

| 4 min read
Advocacy | Our Advocacy Work More Than 160 Advocates Raise Their Voices for PASTEUR Act During March on the Hill

More than 160 people with CF and their loved ones from across the country advocated for a more robust antibiotics pipeline during the CF Foundation's virtual March on the Hill.

| 3 min read
Advocacy | Our Advocacy Work Nearly 200 Teens Gather Virtually for the Foundation’s 12th Annual Teen Advocacy Day

Nearly 200 teens from across the country -- nearly half living with cystic fibrosis -- participated in the Foundation's Virtual Teen Advocacy Day to advocate for the CF community.

| 3 min read
Advocacy | Our Advocacy Work More than 200 Advocates Urge Congress for More Antibiotics During March on the Hill

More than 200 advocates gathered on Capitol Hill during the Cystic Fibrosis Foundation's 14th Annual March on the Hill, championing antibiotic research and development and other policy needs on behalf of people with CF.

| 3 min read
Advocacy | Our Advocacy Work CF Foundation Joins Amicus Brief in Support of Critical Patient Protections and Coverage Expansion

On Monday, April 1, the CF Foundation joined 16 other patient and consumer groups in filing an amicus brief supporting vital patient protections and coverage expansion included in the Affordable Care Act in the appeal of the Texas v. United States decision, which struck down the constitutionality of the health care law in 2018.

| 4 min read
Health Care Reform | Our Advocacy Work | Insurance CF Foundation Responds to Final Short-Term, Limited-Duration Health Insurance Rule

Yesterday, the U.S. Department of Health and Human Services finalized a rule expanding short-term, limited-duration insurance plans -- threatening access to adequate, affordable coverage for people with cystic fibrosis who rely on the individual marketplace.

| 2 min read
Our Advocacy Work Cystic Fibrosis Foundation Responds to ICER Review of CFTR Modulators

The Cystic Fibrosis Foundation responds to the Institute for Clinical and Economic Review's assessment of the comparative clinical effectiveness and value of cystic fibrosis transmembrane conductance regulator (CFTR) modulators.

| 4 min read