More than 60 teens from across the country — almost half of whom live with cystic fibrosis — advocated for support of the PASTEUR Act.
Centering the patient experience is the only way to successfully reform pharmacy benefit manager practices
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4 min read
The Cystic Fibrosis Foundation is providing additional funds to TB Alliance to advance the development of a compound that could be used to treat infections caused by nontuberculous mycobacteria.
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2 min read
Medicaid beneficiaries are encouraged to update their information with Medicaid to ensure continued coverage.
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The U.S. Food and Drug Administration approved Kalydeco® (ivacaftor) for infants as young as 1 month who have at least one copy of 97 mutations that have proven to be responsive to Kalydeco.
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4 min read
Groups urging need for revitalizing antimicrobial development call for passage of the bill this year
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With this approval, approximately 2,250 children in the U.S. will be eligible for Trikafta® (elexacaftor/tezacaftor/ivacaftor), including more than 900 who will have access to a CFTR modulator for the first time. The Cystic Fibrosis Foundation believes it is beneficial to start people with cystic fibrosis on modulators as early as possible to help prevent lung damage and the onset of complications.
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Proposed policies would impose significant barriers and add burden for people with CF
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3 min read
Human resources veteran Massenburg brings more than 20 years of leadership experience in nonprofit and business sectors
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3 min read
Funding will support clinical trials for therapy that could help improve digestion in people with CF
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3 min read