The Cystic Fibrosis Foundation is proud to announce that Chad Riedy and Jaclyn and Drew Strube will be our new national advocacy chairs. In this role, they will work with the Foundation to spearhead advocacy campaigns that support people with CF and serve as spokespeople to make sure elected officials are aware of the needs of the CF community.
“We are honored to have Chad, Jaclyn, and Drew serve as leaders in our fight for adequate, affordable health care,” said Mary Dwight, SVP of policy and advocacy at the CF Foundation. “Through their steadfast dedication and passion, we know they will help pave the way for a better future for all people with cystic fibrosis and their families.”
Jaclyn and Drew Strube have been involved in CF advocacy for several years and have quickly become leading voices in the community. They are parents to 3-year-old Major, who has cystic fibrosis, and are also frequent contributors to the CF Community Blog. They live in Des Moines, Iowa.
Chad Riedy, an adult living with CF, has played a key role on the CF Foundation's Adult Advisory Council and is an influential voice on social media, serving as a host of the YouTube channel, Staying Salty. He is a father to two boys and is also a dedicated fundraiser. He lives in Alexandria, Va. with his wife and sons.
Riedy and the Strubes are succeeding Rebecca Schroeder and Melissa Shiffman, who began serving as the CF Foundation's national advocacy chairs in 2015. Melissa was diagnosed with cystic fibrosis at the age of 5, and was given the 2018 Alex Award, the highest honor the CF Foundation awards to members of the community. Rebecca, who stepped down as chair in December 2017, is the volunteer chair of the Great Strides walk in Spokane, Wash., and serves on the Parent/Family Advisory Board for the CF clinic at Sacred Heart Hospital in Spokane.
To stay informed about the Foundation's advocacy work and get involved, text “FIGHTCF” to 96387 or sign up for the CF Foundation's Advocacy Alerts.