The Cystic Fibrosis Foundation announced the recipients of its fifth annual Impact Grants, which provide up to $10,000 per year of funding to individuals and organizations who are leading unique projects within the cystic fibrosis community to support people living with the disease, their families, and loved ones.
This year's grantees will support the CF community through various programs that focus on virtually engaging and connecting people with CF, including online dance classes, job training workshops, and a storytelling podcast. Another program is focused on supporting and fostering connection across the Black CF community. According to the CF Foundation Patient Registry, approximately five percent of people with CF identify as Black, and are more likely to have rare mutations that cannot be treated with current modulators, making additional support for the Black CF community an important step to improve outcomes and quality of life.
Staying six feet apart from other people with CF is normal for most living with the disease who face greater risk of getting and spreading germs to one another. With heightened infection risk due to COVID-19, building and maintaining online communities is more important now than ever.
Recipients are selected in consultation with the CF Adult Advisory Council, an external panel entirely composed of adults living with CF. In addition to the four new grants in 2020, three 2019 Impact Grants have been renewed for one year.
2020 Impact Grant Recipients
But, You Look Healthy
A storytelling podcast that highlights the unique moments of life with CF through interviews with many people who have different perspectives of the disease to better amplify their voices, connect the community, and raise awareness
Dancing Together With CF
A free, livestreamed dance class for the CF community that replicates a traditional dance studio experience by providing video group dance classes featuring movement designed specifically for people living with CF and the opportunity for participants to connect
Raising Cystic Fibrosis Engagement in the African American Community
A program expansion from the National Organization of African Americans With Cystic Fibrosis (NOAACF), that aims to connect and engage people with CF and their families in the African American community through online workshops, an expanding network of virtual support, and more
A program piloted by the Claire’s Place Foundation, Work Proudly provides adults with CF and their caregivers with job training and equipment to gain the skills necessary to be competitive in the job market and acquire flexible, work-from-home employment
2019 Impact Grant renewal recipients are:
Fall Risk: The CF Musical Comedy
Fall Risk: The CF Musical Comedy is a CF-based musical comedy bringing people living with CF together virtually in musical theatre through singing, playing instruments, writing music, or lending their voice for a speaking role. Participants will take part in arranging music for the show and recording a demo CD.
Health Advocacy Summit
Health Advocacy Summit is a day-long conference, with the option to attend and interact virtually, that provides young adults with chronic and rare diseases with the support, knowledge, and skills to become strong advocates for themselves and their communities through discussion-based sessions and speakers.
sINgSPIRE Virtual Choir
sINgSPIRE Virtual Choir is a virtual choir expanded from the Breathe Bravely sINgSPIRE program where people living with CF receive music and voice assignments, connect through online group video rehearsals, and record their individual parts together to create a unified choral piece.