Cystic Fibrosis Foundation Establishes Landmark Patient Assistance Foundation
| 3 min read

(Bethesda, Md.) -- The Cystic Fibrosis Foundation today announced the launch of a Cystic Fibrosis Patient Assistance Foundation, a nonprofit subsidiary that will help patients pay for certain high-cost medications they cannot afford.

All funds to support patients will be provided exclusively by pharmaceutical manufacturers. No dollars donated to the CF Foundation will be used for patient assistance. CF Foundation donations will continue to support research for a cure.

“Treatment costs are escalating beyond many cystic fibrosis patients' ability to pay,” said Robert J. Beall, Ph.D., President and CEO of the Foundation. “Thanks to remarkable advances in research and care, people with CF are living into their 40s, 50s and beyond. Our challenge now is to make sure people can afford the advanced treatments we are working so hard to develop.”

The Cystic Fibrosis Patient Assistance Foundation is a first-of-its kind service dedicated solely for people with CF. It will help patients pay for essential, FDA-approved therapies for the treatment of lung disease. For information, call 888-315-4154.

While 99 percent of people with cystic fibrosis have health insurance, increasingly patients are struggling to afford treatments because their coverage is not adequate. In fact, one in four CF patients report they skipped doses of medicine or purposefully took smaller doses in the past year because of the cost. Nearly one in five have delayed seeking care for the same reason.

The average annual cost for CF treatment is about $43,000.

To receive financial assistance, CF patients need to meet certain eligibility criteria. The criteria was established by a separate board that oversees the Cystic Fibrosis Patient Assistance Foundation. Operation of the organization is contingent on continued funding from pharmaceutical manufacturers. 

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The CF Foundation funds more cystic fibrosis research than any other organization, and nearly every CF drug available today was made possible because of CF Foundation support. Based in Bethesda, Md., the CF Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is a donor-supported nonprofit organization. 

Media Contact

Laurie Fink, national director of media relations: 301-841-2602lfink@cff.org

Share this article
Topics
About the CF Foundation | Patient Assistance
Recent news
CF Foundation Awards $1.6 Million to Improve Detection of Lung Transplant Complication
News | 5 min read
CF Foundation Announces New National Advocacy Chairs
News | 5 min read
More Than 160 Advocates Raise Their Voices for PASTEUR Act During March on the Hill
News | 3 min read
Stay up to date with The Foundation

Sign up for our newsletter to get all of the latest news from The Foundation right in your inbox.

Subscribe