BETHESDA, Md. (May 13, 2025) — As Congress considers deep cuts to Medicaid as part of budget reconciliation, the Cystic Fibrosis Foundation issues the following statement:
The CF Foundation expresses grave concern and strong opposition to the proposed cuts to Medicaid considered by Congress, which could cut off access to lifesaving therapies, care, and other resources for the nearly 40% of people with cystic fibrosis who rely on Medicaid for some or all of their health care coverage.
Access to consistent care and specialized therapies is essential for those living with a progressive disease. Gaps in Medicaid coverage — even for as little as one month — may put people with CF at risk of declining health, including increased lung exacerbations, irreversible lung damage, and hospitalizations. Through the successful development of transformative therapies and continuous improvements in disease management, living with cystic fibrosis is no longer the death sentence it once was. But without this crucial source of health coverage, many people with CF will be put at unnecessary risk of getting sicker and or even face premature death.
The Foundation believes that protecting and preserving Medicaid is critical to our mission of ensuring all people with CF have the opportunity to lead long, healthy lives. We oppose any cuts to Medicaid that endanger the essential and complex care that cystic fibrosis requires. We urge Congress to reject these reckless cuts and prioritize the health of all Americans by maintaining its commitment to this vital program.
About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organization. For more information, visit cff.org.
Media Contact
Katie Haswell
khaswell@cff.org
240-200-3706