BETHESDA, Md. (June 17, 2025) — The Senate reconciliation bill language released Monday proposes deep cuts to health care. In response, the Cystic Fibrosis Foundation, on behalf of the nearly 40,000 people with cystic fibrosis in the United States, issues the following statement:

The Cystic Fibrosis Foundation strongly condemns the Senate’s reconciliation proposal, which will destabilize Medicaid and the Affordable Care Act (ACA) marketplace. If this bill becomes law, there will be fewer people with CF who have comprehensive coverage, fewer services people with CF can rely on for their specialized care, and higher costs for treatments people living with cystic fibrosis need.

With a chronic, lifelong condition like CF, it is essential to have consistent access to treatments and care. It is impossible to make cuts to Medicaid and the ACA marketplace without harming people with cystic fibrosis. If passed and implemented, this legislation will exacerbate the challenges people with CF face in accessing and affording their care.

As written, the proposal will require people with CF to endure outrageous amounts of red tape that will make maintaining essential health coverage inaccessible and insurmountable; force people with chronic diseases to make financial trade-offs that could jeopardize their short- and long-term health; and undercut states’ ability to support their Medicaid programs.

This is not cutting waste, it’s cutting health care. The data is clear: the nonpartisan Congressional Budget Office confirmed that this legislation would terminate health coverage for at least 16 million people. Despite repeated public assertions, the Senate has clearly broken its promise by proposing a bill that threatens to eliminate coverage for people who simply cannot afford to go without health care, including people living with cystic fibrosis. The results of these cuts will be devastating — people with CF will be burdened with increasing coverage loss and, as a result, worsening health outcomes.

The Cystic Fibrosis Foundation implores the Senate to vote ‘no’ on this package, honor their promise to protect vital health coverage, and recommit to the dignity and health of all Americans.

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organization. For more information, visit cff.org.

Media Contact

Katie Haswell
khaswell@cff.org
240-200-3706