BETHESDA, Md. (July 1, 2025) – Today, the U.S. Senate passed a reconciliation bill that includes $1 trillion in health care cuts — surpassing even the deep cuts passed by the House — and makes devastating changes to Medicaid and the marketplace. The Cystic Fibrosis Foundation issued the following statement:
We strongly condemn the Senate for passing a reconciliation package that threatens to dismantle comprehensive health coverage for many people with cystic fibrosis and their families. The true cost of these so-called “savings” will be on the backs of people’s access to health care, terminating coverage for more than 16 million people, including those with cystic fibrosis.
Throughout the entirety of the reconciliation process, Congress promised that it would not cut benefits or make it more difficult for Americans to access vital health care. However, this bill is a promise broken to all those living with a chronic disease. As written, this legislation burdens adults with cystic fibrosis with significant red tape, adds to the cost of their care, and reduces states’ ability to support people living with the disease.
Advancements in care and treatment mean that babies born with cystic fibrosis, who previously may not have been expected to reach elementary school, now have the potential to live well into their 60s. Congress has chosen to jeopardize this progress by threatening the very coverage options that make access to these life-extending treatments possible.
We are appalled by the Senate’s actions and broken promises. On behalf of the 40,000 people who live with cystic fibrosis across the United States and those who care for them, we urge the House to reject this reckless and harmful legislation. Congress should be advancing policies that expand access to care, strengthen Medicaid, and invest in a healthier future for everyone, not ripping health care away from millions of people, including those with cystic fibrosis.
About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organization. For more information, visit cff.org.
Media Contact
Katie Haswell
khaswell@cff.org
240-200-3706