Living with cystic fibrosis, your dreams for the future can be a little hazy. But while attending my grandmother's 90th birthday celebration recently, I was struck by an image of myself that I had never seen before: myself in the distant future.
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For the first time, the Cystic Fibrosis Foundation invited non-CF experts to its annual research conference to meet with CF researchers. The conference -- New Technologies Advancing Toward a One-Time Cure -- in Savannah last month focused on the challenges being faced in gene editing, gene delivery and stem-cell biology and laid the foundation for new collaborations.
The CF Foundation's CEO reflects on the passing of Mary Weiss, who helped blaze new trails in the fight against CF.
When I was born, my parents were told that I would not live to see my 18th birthday. While I've had my challenges with cystic fibrosis, I've reached so many meaningful milestones in my life, including getting married. I'm so grateful for the “tomorrows” I've had.
When my husband and I were given the thumbs-up from my cystic fibrosis doctor to start trying for our own family, it felt like a small victory 12 years in the making. After being referred to a maternal-fetal medicine physician for a preconception consultation, we are finally taking our first steps toward parenthood.
Want to know why getting a flu shot is so important? I ignored my early flu symptoms, which ended up spoiling the holidays and leading to an exacerbation.
Sending our son to school was scary, but we have a plan to keep him healthy.
Over the past 20 years, I've learned a lot when it comes to raising funds to support my daughter, who has cystic fibrosis. Here are some tips for connecting with sponsors to ensure fundraising success.
After my son, Zach, was diagnosed with this cystic fibrosis, my wife and I began to understand the many challenges associated with it. We quickly realized we wanted to support the Cystic Fibrosis Foundation so we could help our son in every way possible. Here are some fundraising ideas that were simple, yet effective, for us in securing donations.
Before my double lung transplant, I experienced major body aches and poor posture due to my cystic fibrosis. Here are some of the ways I found to help combat this and ease some of my pain.