Site Search

Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments

CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases

Foundation and Legislative Supporters Pushed for Bill

Bill Would Remove Financial Penalties for Participating in Research Studies

This year, Cystic Fibrosis Advocates inspired new champions in Washington, D.C. and in state capitols across the country to take action on critical CF-related issues.

Revised Law Includes Designated Funding for Rare Diseases