Senate Caucus will work with House Caucus to raise awareness, advance policies and support research
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Bill Would Remove Barrier to Clinical Research for Rare Diseases by Ensuring that Clinical Trial Participants Don't Lose Critical Health Benefits
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Legislation Would Remove Financial Penalties for Participating in Research Studies
By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.
New Bill Would Remove Financial Penalties for Participating in Research Studies
Connecticut and Texas Last to Join Others in Testing for Life-threatening Disease