Growing up, Keenan Flynn rejected what he saw as negative messages surrounding cystic fibrosis. Keenan credits a healthy mental attitude, and a non-acceptance of the negative messages about his health, for his physical development.
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There is no greater instinct than a mother's need to protect, and I have had to willfully disregard it countless times in my journey with CF.
As we reflect on 2016, we are so thankful to our friends around the country, dedicated researchers, care center professionals, volunteers and, most of all, those of you living with CF.
The Institute for Clinical and Economic Review (ICER) is developing an assessment of the clinical effectiveness and value of lumacaftor/ivacaftor (Orkambi®) and ivacaftor/tezacaftor (VX-661). The Foundation is sharing input throughout the process to help incorporate the patient and clinical perspective.
While I am not grateful for having cystic fibrosis and cystic fibrosis-related diabetes, I have no doubt that if it weren't for me having CF, I would not have become the person that I am today.
Google has made it easy for everybody to research cystic fibrosis, but CF is only part of my story and how I tell it is up to me.
Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
Read how one grandmother is adding tomorrows.
Learn about the 2017 health insurance landscape and get tips on preparing for open enrollment from a CF Foundation Compass expert.