Having spent her career working for a cure for cystic fibrosis, Patty Burks is still not content. She wants to remember her son in a way that makes a difference for others. That's why she has made the CF Foundation a beneficiary of her life insurance policy. This gift to the Foundation meets a need in her heart.
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There is no greater instinct than a mother's need to protect, and I have had to willfully disregard it countless times in my journey with CF.
Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.
My husband and I had always seen ourselves raising our family in a small western town. But after our daughter Annie was born and diagnosed with cystic fibrosis, we realized that we might have to let go of the rural life that we had imagined.
There have been a few moments over the past four years that have provided us with perfect opportunities to give both of our kids a fuller understanding of the multifaceted nature of cystic fibrosis.
When our son was diagnosed with CF, the clinic director sat with me for hours answering my questions. Since that day, I have wanted to bottle up his advice and become a voice of encouragement for new CF parents.
While I would have never asked for cystic fibrosis to enter my life, there is not a single day that goes by that I do not thank my lucky stars that I have the Foundation on my side.
When life was crazy busy having two babies born with CF, Marc and I would wake up 20 minutes earlier to make time for a cup of coffee together.
During our family round trip from Oklahoma to Florida, I learned a thing or two about traveling with a CF tot.
Going back to work was hard. So. Very. Hard. But with the mounting costs of cystic fibrosis, I didn't have a choice. The decision had been made for me.