Sending your child to kindergarten for the first time is hard enough, but when your child has cystic fibrosis, it is even harder. Here's how I handled my daughter's transition to kindergarten and the lessons I learned along the way.
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The initial sadness we felt when learning that our son had cystic fibrosis quickly gave way to our determination -- as a family -- to react in a productive way.
After our son Sam died in 1990, I felt a kinship to everyone impacted by cystic fibrosis. I knew they could understand what we'd been through: parenting and losing a very special human being we loved so deeply.
Kids can be picky eaters. When you have a child with CF and the nutritional stakes are higher, you may need some creativity to keep them interested.
I went through a roller coaster of emotions after my child was diagnosed with cystic fibrosis. One of the most important lessons I learned is that I had to take care of myself first so I could take care of my daughter.
Although keeping up with daily cystic fibrosis treatments can be frustrating, it is key for staying healthy and living the life you want to live. So, Superhero Big Air Jerry was born to help kids with CF feel more empowered in their daily CF care and overcome challenges through positivity.
As the single parent of a child with cystic fibrosis, life is a difficult balancing act. That's why, sometimes, I feel a bit like Jean-Claude Van Damme.
As Evan's mom, I have to constantly decide where to invest my time, especially when it comes to providing feedback. So, when offered the chance to turn my survey fatigue into something that would actually make a difference and be less of a hassle to do, I jumped at it.