There are a lot of misconceptions about illnesses. For one, you're supposed to look sick -- or like other people's perception of a sick person. Once I started to doubt myself and the gravity of my illness, I began internalizing a whole lot of guilt.
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Sometimes during weak moments, when my lung function has dropped despite doing everything in my power to hold off the destruction, I think, “What's the point?” Then I remind myself of the larger goal …
Here's my experience with that awkward moment when you have to tell that one person who has always been there for you your whole life that they need to just let go a little bit.
This is my story about when I met a man who showed me kindness, support, trust and compassion in a way that I had never known, and how I explained my CF to him -- on my own terms.
I've known for a while that pregnancy isn't an option for me due to complications related to my cystic fibrosis. Now that my husband and I are planning for children, here are some of the thoughts and considerations that impacted our family planning decisions.
Google has made it easy for everybody to research cystic fibrosis, but CF is only part of my story and how I tell it is up to me.
As the spouse of a woman with cystic fibrosis, there is a fine line between being a husband and caregiver. Although CF can add stress to our relationship, I've learned that sometimes the best thing we can do is simply step back and enjoy each other.
There were three important things that my parents did for me while I was growing up that helped me become an independent and positive person.
Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
Cystic fibrosis can be a third wheel in a dating relationship. I'm still looking for someone who can love us both.