Having cystic fibrosis, I learned about social distancing long ago. Here is my advice on remaining socially connected.
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CF complicates even the simplest-seeming routines. But it also has helped us learn to listen to be strong, listen to each other, and love one another better.
On the Foundation's Facebook, we asked the question, “Have you ever experienced a random act of kindness from a stranger?” We were so moved by all the stories that we had to share them. Check out some of our favorite responses.
Although it's painful, my commitment to the military in Afghanistan will help me honor my commitment to keeping my son, Cohen -- and the rest of my kids -- healthy.
If you were to ask me what my most prized possession is, it would be my sleeve tattoo. Getting this tattoo helped me recover emotionally from a month-long hospital visit and keeps me motivated today.
When my wife's health declined and we didn't know if she'd be able to undergo a lung transplant, I decided to reject blind optimism and pessimism and chose a third path.
For months, I was too scared to tell anyone that my new inhaled antibiotic wasn't working for me. But after opening up about it with my CF care team, I learned that being honest is the most important thing I can do when it comes to maintaining my daily care.
In the age of social media, finding a balance between appearing normal and wanting people to know when you're sick or in the hospital is no easy task -- especially when you have an invisible disease like cystic fibrosis.
Having enjoyed good health most of my life, I gave little thought to cross-infection risk -- even though others in my family have cystic fibrosis. The birth of my son has me rethinking that.
Dating did not adequately prepare my husband for the mental toll that cystic fibrosis takes in your life; but he rose to the challenge in our first year of marriage, and I discovered the beauty of vulnerability.