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The "65 Roses" story dates back to 1965 when an observant 4-year-old, Richard "Ricky" Weiss, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses." Today, "65 Roses" is a term often used by young children with cystic fibrosis to pronounce the name of their disease
4 min read
Ad hoc patient advocacy coalition provides comments to Pennsylvania’s Insurance Commission to inform decision making regarding the state’s essential health benefits benchmark plan.
Sept. 1, 2023
The CF Foundation writes to Michigan’s House Committee on Insurance and Financial Services to provide comments on SB 483: The Prescription Drug Cost and Affordability Review Act, which would create a prescription drug affordability board in the state.
Oct. 9, 2023