The Cystic Fibrosis Registry Global Harmonization Group published in the Journal of Cystic Fibrosis updated data on the impact of COVID-19 on people with CF. The manuscript reports on 181 people with cystic fibrosis from 19 countries diagnosed with COVID-19.
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Press Release
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Nov. 9, 2020
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4 min read
The Cystic Fibrosis Registry Global Harmonization Group, including the Cystic Fibrosis Foundation, published findings from the first global study on the impact of COVID-19 on children with cystic fibrosis in the Journal of Cystic Fibrosis.
Press Release
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Dec. 9, 2020
|
4 min read
Close to 40,000 people in the U.S. have cystic fibrosis, a rare genetic disease. The majority of people with CF are diagnosed by age 2 thanks to newborn screening tests. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make decisions about your health care.
The CF Foundation has been closely monitoring the COVID-19 pandemic and how it may affect people with cystic fibrosis and their families. Resources are available to help inform and provide a sense of community while we take precautions to protect ourselves and loved ones with CF.