PTC Therapeutics has discontinued development of ataluren as a potential treatment for people with cystic fibrosis caused by a nonsense mutation. The Cystic Fibrosis Foundation is supporting efforts to pursue treatments for people with CF who have a nonsense, splicing or other rare mutations.
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News
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March 3, 2017
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3 min read
Although most women with cystic fibrosis are able to become pregnant, there are still many factors to consider. Before you decide to pursue pregnancy, it is important to understand the key implications.
Deciding to have a child when you have cystic fibrosis requires a great deal of planning. Fortunately, addressing some key questions can help you navigate the family planning process.
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.