As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
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Dana Handler, an intern with the Foundation's advocacy team, recounts her experience and explains her renewed confidence that we'll find a cure for cystic fibrosis.
A top priority for the next administration and Congress is health care reform. As an adult living with cystic fibrosis, I've been wondering what this will mean for me, our community and our ability to access high-quality, affordable care.
Life with cystic fibrosis is complicated, but there are ways to make things run a bit more smoothly. Here are some of my favorite ways to stay organized with CF.
Going on a camping trip is a great way to relax and unplug from the daily grind, but when you have cystic fibrosis, unplugging requires some planning and strategy.
A mother worries that her son may lose access to crucial cystic fibrosis medication if proposed health care reforms are carried out.
Before I had my son, I had organized my life in such a way that everything flowed in orchestrated harmony. But I found that as he grew I allowed his needs to eclipse my own, and my life soon fell out of balance.
As our country prepares for the transition to a new presidential administration and congressional session, the CF Foundation is hard at work to understand what the changes in our political leadership mean for people with cystic fibrosis. Our interest is in supporting you.
Having cystic fibrosis can be a full-time job -- especially when you already have one. Here are some of my tips for managing work, life and a busy schedule with CF.
After turning 60, I decided to mark the milestone by creating a “living list,” 60 things I could do to raise awareness and money for cystic fibrosis care.