Growing up, the term “life expectancy” was always with me, affecting my choices and expectations. Over time, I learned to tune it out and live my life my way.
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Showing 31 - 35 of 35 results
Linda Bowman
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5 min read
Managing your blood sugar if you have cystic fibrosis-related diabetes is difficult, but the glycemic index can help.
Gretchen M. Garlow, M.S., R.D., L.D.N., C.N.S.C.
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5 min read
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.
It took a lot of self-advocacy — and a lot of medical testing — before I received a diagnosis of CFTR-related disorder. Fortunately, my parents supported me as I went from specialist to specialist and finally got my diagnosis.
Natalie Keas
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6 min read
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
Zanny Merullo Steffgen
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6 min read