PTC Therapeutics has discontinued development of ataluren as a potential treatment for people with cystic fibrosis caused by a nonsense mutation. The Cystic Fibrosis Foundation is supporting efforts to pursue treatments for people with CF who have a nonsense, splicing or other rare mutations.
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Everyone needs a break from time to time. In fact, sometimes a family trip or a getaway with friends is just what the doctor ordered. In this section, we'll discuss ways to manage your CF while traveling so that you return home as healthy as when you left.
Overseas travel can be a challenge, even for the most experienced of travelers. If you have cystic fibrosis and are considering traveling abroad, early planning can help.
Managing cystic fibrosis can feel overwhelming at times — but we’re here to help. Learn how to navigate life with CF.
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.
In addition to the typical travel headaches, people with cystic fibrosis must also consider other things related to their health. This section will discuss ways to be as prepared as possible for your trip so that you can spend less time on travel hassles and more time enjoying yourself.