When I was growing up, having a positive cystic fibrosis diagnosis did not automatically mean that I got the care and treatments I needed. It wasn't until my 22nd birthday, when I was in poor health, that I decided I needed to get healthy and speak out for myself.
Mary Duggan Lee Watson, a longtime coach, doesn't mind taking on adversity. When her granddaughter was diagnosed with CF, she decided to fight the disease doing what she loved: sports.
Join us via live stream for the 2016 CF Foundation Volunteer Leadership Conference and make your voice heard.
I thought I would never get married -- I didn't want to burden anyone else with my CF. But, after meeting Ramon, we knew we wanted to get married and the only gift we wanted was time.
For three years, the Adult Advisory Council has been leading the way in helping the Cystic Fibrosis Foundation reach out to adults with CF. Our work as a council led to the formation of the Community Partnerships department at the Foundation and a formalized Peer-to-Peer Mentoring Program, which is being piloted in 12 CF care centers, with more to come.
I started “striding” in 2011 and have made it a goal to participate every year. Here are the top five reasons why I stride and think others should too:
Paul participates in Great Strides, advocates on the Hill and has even launched a CF fundraiser. Oh, and he's only 18.
When he isn't with his family or at work, Jeff Burnett can be found leading a team of 30 cyclists and training for the Cystic Fibrosis Foundation's CF Cycle for Life event.
A reality show inspired this family to create an ingenious fundraising and awareness event for cystic fibrosis.
More than 800 guests gathered to celebrate the therapeutic benefits that surfing brings to people with CF at the 8th annual Pipeline to a Cure gala.