The Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in strongly urging governors and states to take additional action to protect Medicaid coverage for the children and families over the next year.
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In a letter to the U.S. Department of Health and Human Services and the U.S. Department of Labor, the Foundation requested the two agencies provide guidance to health insurers across all plan types clarifying that they must follow the co-pay assistance provision included in the 2020 Notice of Benefit and Payment Parameters.
In a letter to the House Energy & Commerce Health Subcommittee, the Foundation joins a cohort of patient organizations to stress the importance of addressing antimicrobial resistance and prioritize the passage of the PASTEUR Act.
In a letter to the House Energy & Commerce Committee, the Cystic Fibrosis Foundation states its support for legislation that addresses antimicrobial resistance, orphan drug exclusivity, and access to specialized care across state lines.
In a letter to the Department of Health and Human Services and the Domestic Policy Council, the Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging for the prompt finalization of a number of pending rules that will greatly advance affordable, accessible, and adequate healthcare coverage.
In a letter to the Department of Labor, the Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in encouraging the department to rescind the 2018 Association Health Plan rule due to a number of inappropriate provisions including that the rule was at odds with both the text and purpose of the Employee Retirement Income Security
In a letter to the California Department of Health Care Services, the Cystic Fibrosis Foundation expressed support for California's proposal to provide multi-year continuous Medicaid coverage for children under age four, which would protect patients and families from gaps in care and promote health equity.
In a letter to all Utah legislators, the Cystic Fibrosis Foundation expressed its support for SB 152, which would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
In a letter to the Insurance Subcommittee of South Carolina's House Labor, Commerce, and Industry Committee, the Foundation expressed its support for H.3618 which would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements, as well as ban maximizer programs and alternative programs
In a letter to the Ohio House Insurance Committee, the Cystic Fibrosis Foundation expressed its support of HB 130 to streamline prior authorization requirements and urged the committee to lower the gold carding threshold for prescribers.