The Cystic Fibrosis Registry Global Harmonization Group published in the Journal of Cystic Fibrosis updated data on the impact of COVID-19 on people with CF. The manuscript reports on 181 people with cystic fibrosis from 19 countries diagnosed with COVID-19.
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More than 160 organizations join the Cystic Fibrosis Foundation in asking Congress to expand paid family and medical leave for people with chronic conditions, such as cystic fibrosis.
The letter to Senators Mitch McConnell and Orrin Hatch highlights the critical role that Medicaid plays in helping patients and consumers access adequate, affordable health insurance.
Eight organizations issue statement criticizing Upton Amendment.
Patient and provider groups urge safeguard for the health and lives of millions of Americans with a bipartisan approach to reform.
Today, the Senate released a new draft of the Better Care Reconciliation Act (BCRA), including an amendment that would allow insurance companies to offer plans not in compliance with critical patient protections in current law.
The organizations urge continued protections for patients.
The organizations called on Congress to take a bipartisan approach to reform.
Proposed policies would impose significant barriers and add burden for people with CF