I was thrilled to learn earlier this month that Emily Kramer-Golinkoff, a young woman living with cystic fibrosis, would be honored by the White House as a “Champion of Change” for her work to advance the field of personalized medicine.
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Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
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This week, Congress approved a budget resolution that will allow lawmakers to make certain changes to the Affordable Care Act and Medicaid.
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
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