By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our archived state and federal statements, letters, and regulatory comments from 2018–June 2023.
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New Bill Would Remove Financial Penalties for Participating in Research Studies
Connecticut and Texas Last to Join Others in Testing for Life-threatening Disease
Since our founding in 1955, we have worked alongside the cystic fibrosis community to effectively transform a genetic disease in a single generation — making CF one of the most amazing stories in medicine today. Read about the milestones we've achieved in pursuit of a cure for cystic fibrosis.
The Cystic Fibrosis Foundation announced the appointment of Marc Ginsky as executive vice president and chief operating officer. Mr. Ginsky will oversee the Foundation's day-to-day operations with a focus on field management, information technology and the Foundation's infrastructure.
NCQA Honors The Foundation for Leadership in Improving Care
Robert J. Beall, Ph.D., today announced he will step down as president and chief executive officer of the Cystic Fibrosis Foundation, effective December 31, 2015. Preston W. Campbell III, M.D., currently the Foundation's executive vice president for medical affairs, will succeed Dr. Beall as president and CEO.
Learn about the rights of Cystic Fibrosis Foundation donors.
The Cystic Fibrosis Foundation (“CF Foundation” or “we”) is committed to protecting your privacy. This Privacy Statement explains what type of information we may collect and how we may collect, retain, process, share, and transfer that information from website visitors and other individuals with whom we interact, whether online or offline, why we collect it, and with whom we may share it. It also describes how we protect your personal information and how you can contact us with any questions or to exercise the rights you may have to control our use of your information.