CF Foundation-accredited care centers play an important role in research. They collect information on the health status of their patients with CF who agree to participate, and report that data to the CF Foundation Patient Registry. The information is available in aggregate to the CF community each year through the Data Report, the Highlights Report, and the Care Center Finder.
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Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
Peter Frey
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2 min read
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
Aliza Fink, D.Sc.
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4 min read
A day spent visiting a care center proved the perfect introduction to the CF story for legislative staffers.
Stacey Falardeau
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4 min read
News
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Dec. 10, 2009
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3 min read
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
Cindy George
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5 min read
News
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Dec. 15, 2009
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2 min read
News
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Feb. 20, 2009
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2 min read
News
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Feb. 7, 2007
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1 min read
News
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July 29, 2010
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2 min read