In comments responding to the Department of Health and Human Services’ Notice of Benefits and Payment Parameters for 2025, the Partnership for Protecting Coverage proposed standards for issuers and Marketplaces, as well as requirements for agents, brokers, web-brokers, direct enrollment entities, and assisters that help Marketplace consumers.
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In response to a request for information from the U.S. Senate Committee on Health, Education, Labor, and Pensions, the Foundation called for novel, innovative coverage models to ensure access of these critical therapies when they become available to people with cystic fibrosis.
The Cystic Fibrosis Foundation joined the coalition in an amicus brief and related statement to explain how the court’s decision would threaten patients’ and providers’ ability to rely on the U.S. Food and Drug Administration’s decisions regarding drug safety.
In a letter to the Illinois General Assembly, the CF Foundation provides feedback on HB 4472 which would establish an affordability board with the goal to improve access to and affordability of care for Illinoisans.
In a letter to the Nebraska Senate’s Committee on Health and Human Services, the CF Foundation urged legislators to amend LB 1060 to require the provision of materials to parents about the lifesaving benefits of newborn screening and the risks of opting out before parents decide to forgo this service.
In a letter to New Hampshire’s Senate Committee on Health and Human Services, the Foundation expressed its support for SB 354, which, if passed, would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
In a letter to the Vermont House of Representatives, the Cystic Fibrosis Foundation expressed its support for H. 766, which, if passed, would make several important reforms to the prior authorization process and would require insurers to apply third-party assistance to out-of-pocket maximums and other patient cost-sharing requirements.
In a letter to Pennsylvania Department of Human Services, the Cystic Fibrosis Foundation expressed support for Pennsylvania’s proposal to provide multi-year continuous Medicaid coverage for children under age six, which would protect patients and families from gaps in care and promote health equity.
The Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging the Centers for Medicare and Medicaid Coverage to strengthen critical policies that would improve the Medicaid redetermination process.
The Cystic Fibrosis Foundation joined patient and health groups in writing a letter to House appropriators, asking they ensure the National Institute of Allergy and Infectious Diseases receives boosted funding needed to meet its critical, multi-faceted mission.