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Our federal and state advocacy efforts support our mission of ensuring that everyone with cystic fibrosis has access to high-quality, specialized care. We evaluate policies and legislation through one lens: How would this impact people with CF and their families?
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Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
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4 min read
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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2 min read
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
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5 min read