I have answered questions from many about what cystic fibrosis is, but the question that I really wanted to address was: why do I believe I have CF?
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Although I'm glad that my two children with cystic fibrosis will soon have the opportunity to try Trikafta, I am also a little worried about whether they will have side effects and how well they will do on the drug long-term.
Dara Riva
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5 min read
Understanding that I suffered trauma from medical encounters during my childhood helped make me a more effective self-advocate as an adult.
Dorothee Marx
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7 min read
As a person with cystic fibrosis, I used alcohol and drugs to fit in with my peers and cope with the hardships of having a chronic disease. I still struggle with sobriety, but I have taken control of my health and my life.
Joey Pelletier
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7 min read