There were three important things that my parents did for me while I was growing up that helped me become an independent and positive person.
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Learning to help my wife access her port is part of our shared journey with CF. Check out our video for some tips and tricks we’ve learned along the way.
Many people might be put off by the thought of participating in a clinical trial. The increasing life expectancy for CFers like me, however, is a testament to the impact medical research can have on the development of therapies for cystic fibrosis.
Because transplant is such a complex process, most transplant centers require that candidates gather the necessary social support to help navigate the transplant process.
In the third plenary, Dr. Wayne Morgan talked about the connection between cystic fibrosis care and the Patient Registry, and introduced a new way for people with CF, along with their families, to help shape the research conducted using the Registry.
Cystic fibrosis can be a third wheel in a dating relationship. I'm still looking for someone who can love us both.
The package of tax reforms expected to be signed into law includes several provisions that will impact some people with cystic fibrosis.
My brother received a liver transplant the day before his 15th birthday but soon needed another.
No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
It is hard to know how much to share with our kids. We want to protect them, but we also need to give them age-appropriate information or else their imaginations will run wild.