Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
The Partnerships for Sustaining Daily Care (PSDC) team had the opportunity to hear from people with cystic fibrosis, families and care teams at five Family Education Days at care centers across the country. Here's what we heard.
In a culture flooded with advertisements about the perfect body, secret weight-loss tricks and fad diets, our cultural ideals of weight are often skewed to an image that is far from healthy.
Dietitian Gretchen Garlow demystifies the hottest food trends for people with cystic fibrosis and invites questions for future blog posts.
My desire to help others with CF learn how to eat well led me to make a hard personal decision -- one that continues to pay off.
It can be difficult to find time for daily CF treatments in your already jam-packed lives, but your respiratory therapist can help.
How do you define passion? For me, it's simple. It's the things that I enjoy, the things that I love and the things that I want to do continuously. However, trying to figure out what those things are is not so simple.